• Archives

  • Categories

  • Register

  • Doante

  • signup

  • UW-blog-apps-badge

  • puw2016-hashtag-blog-graphic

  • Subscribe to Blog via Email

    Enter your email address to subscribe to this blog and receive notifications of new posts by email.

The Today Show 4.22.16 – Join Us!!!

April 17th, 2016 by Helaine Isaacs, Event Director

Today Show 30-rock2-MeetHere
Joining the Unity Walk on the plaza of the Today Show on Friday, April 22nd just got easier! May May Ali, Parkinson’s advocate and PUW supporter, and Carol Walton, CEO of The Parkinson Alliance will both be interviewed on the plaza of the Today Show on Friday morning and all Unity Walkers are invited to show your support by joining us. We’ll be there wearing PUW t-shirts, carrying PUW signs and banners, and making some noise – all to raise awareness of the Unity Walk!

Now that we’ve confirmed May May and Carol’s interview, our group is guaranteed great placement on the plaza. We will meet in front of the main entrance to 30 Rockefeller Plaza between 6:00-6:15am. That’s the building that the Christmas tree is in front of in the winter. Rockefeller Plaza runs between 49th and 50th Streets and is parallel to and in between Fifth and Sixth Avenues. At approximately 6:15am, a staff person from the Today Show will escort us onto the plaza behind the spot where May and Carol’s interview will take place. If you arrive after 6:15am, find a staff person at the front of the line on West 48th Street between 5th and 6th Avenues and tell them you’re with the Parkinson’s Unity Walk. They will arrange for you to meet our group on the plaza. You can also call me on my cell when you arrive and I can call a staff person for you. My cell number is 609-651-9155. If you arrive past 6:30am when they let the general public onto the plaza, we will do our best to hold a spot for you with our group but we can’t guarantee it at that point.

Join the Facebook Event for our gathering at the Today Show. Let us know that you’re going and invite friends and family to join us.

We hope you can join us in person. If you’re watching from home, check your local listings to tune in! Follow the updates via our event hashtag #puw2016 and let us know you’re with us in spirit!

Helaine Isaacs
PUW Event Director

It Works to Fundraise at Work!

March 30th, 2016 by Guest Blogger

I speak with our walkers every day and hear all the creative ways they are going about raising funds for Parkinson’s research. Most of our walkers reach out to their family and friends, download our Facebook app and some create fundraising events. Some have partnered with their places of business to raise funds in support of the Unity Walk. We are grateful for the generosity of so many of these companies. HomeServe USA is involving their employees to support Kristin Legenza, a longstanding participant in the Walk, in her effort to raise funds for PUW. Read Kristin’s guest blog post below.

Does your company provide an opportunity to support your fundraising efforts? Maybe they do and it’s something you haven’t explored up until now. This is the perfect time to look into these options. Are you already raising funds at work? Please let us know. We’d love to hear from you!

Helaine Isaacs
PUW Event Director


This year marks Team Legenza’s 6th year participating in the Parkinson’s Unity Walk. I walk for two reasons – my Grandpa Jack and my Dad. Growing up, my Grandpa had Parkinson’s for many years and it eventually took his life. A few years before he passed, my Dad was diagnosed with this debilitating disease as well. My sisters and I knew we wanted to get involved but just didn’t know how. My sister found the Unity Walk online and we immediately started to participate in the Walk and raise funds to find a cure for Parkinson’s disease. It is an amazing family event that we are extremely lucky to be a part of. Every year we try and do more, and luckily I was able to fundraise through work.

I work for a company in Norwalk, CT called HomeServe USA. We often participate in what the office calls “Jeans Passes.” If you donate to the charity chosen by HR, you can wear jeans every day to the office for a certain amount of time. A few months ago, employees were invited to make a presentation to the executives about the charity of our choice and reasons why that charity should selected for this kind of fundraising opportunity. The executives then chose three charities that our employees would contribute to this year. Pushing out of my comfort zone, I took a stand with a colleague of mine and told my peers why the Unity Walk is important to me and what a great experience it is. I spoke about an event where people come together to raise awareness and funds to cure a disease that impacts so many lives and families. I shared my experience of being at the Walk, and what it’s like to come together with a group of people who feel what I feel and who support one another as we stand up and fight.

Sixteen charities were presented and the Unity Walk was chosen as one of the top three. Donations are pouring in and I could not be more grateful to work for a company that supports me and the challenges I face outside of work. Not only are the people I work with donating to PUW, but my company, HomeServe USA, matches every donation dollar for dollar. In addition, HomeServe USA donated $1,000 to each charity that was presented as part of the contest.

People say that anyone can make a difference. After this experience I believe this to be true. Due to my company and my colleague’s generosity, I am part of an effort that is significantly increasing the amount of money raised for research and I couldn’t be more excited! I stepped outside of my comfort zone and shared with my colleagues a personal part of my life that I had previously kept very private. As hard as it was to do, I would do it all over again because I was able to make a difference. If we are willing to ask, people are eager to help do their part to find a cure for a disease that affects so many lives immensely, including my own.

Step out of your comfort zone, remind people of not only the hardships of the disease, but the benefits that come from gathering as a community at the Unity Walk. Fundraise any chance you get. I did and I’m proud of what we’ve accomplished. We each have the capacity to make a difference.

Kristin Legenza
Team Captain, Team Legenza

Rock Steady Boxing – One Walker’s Experience

March 7th, 2016 by Guest Blogger

Double photo #1 Mike Achin RSB copy

I was excited to hear that Rock Steady Boxing (RSB) will receive the Bonander Award at the Unity Walk this year. Over the last two years, RSB has become a very important part of my life. It has taught me a lot about fighting Parkinson’s disease (pd) and not giving up. The more we learn about pd, the more we learn that staying active through exercise is important. A body in motion stays in motion! There are many ways to stay active such as running, swimming, walking, yoga, etc. Just pick what you like to do and start doing it!

Two years ago at the World Parkinson’s Congress in Montreal, my wife, daughter and I attended a working seminar called Rock Steady Boxing. I immediately fell in love with it. It’s everything I had been searching for. I was so excited about this program! That same year at the Unity Walk, more information was available about RSB. The problem was they were in Indiana and I live in Massachusetts. I was searching for answers and trying to figure out how I could bring RSB to my area. I was getting frustrated but then I heard some good news. There was a boxer in Rhode Island who was going to open up his gym to Rock Steady Boxing. My prayers had been answered!!! Rich Gingras, along with my fellow pd warrior Mike Quaglia, had gone to Indy to get trained and BINGO, RSB had a home in Pawtucket, RI. That’s how I got involved. Now let me explain why I love RSB.

The word “boxing” scares some people off. They think we get in the ring and pound each other. Even though that might be fun it’s not what happens. We do everything else a boxer would do such as, footwork (don’t shuffle!!), stretch those muscles (so we don’t become rigid and hunched forward), and yes, putting on the gloves and hitting the heavy bag, hand pads and our new toy, the dummy. Our classes include people living with pd at every range along the continuum of this disease, from those confined to wheelchairs to those just diagnosed, and everything in between. Men and women, ages 30 to 80, all come to battle pd and take charge of our lives.

Everyone who enters our gym immediately becomes part of our band of brothers and sisters. We laugh, cry, enjoy the good days and help each other through the hard days. We are ONE, fighting back at pd!! When you enter our gym it is time to get to work. Get your hands taped up and start walking or jogging. We need to get our hearts pumping. It is now proven that a strenuous exercise program can slow the progression of pd. I have seen it over and over again at RSB. After we warm up, we do a good 15 to 20 minutes of stretching. This is so important in fighting the stiffness that pd tries to give our body. We learn new ways to stretch. We can do these on our own at home too. Last but not least, get the gloves on!! “It’s just you and me now pd … and I feel good. I am going to knock you silly!!” Every participant in the class works with a partner and we encourage one another to work to the best of our ability. We are all learning to take control of our lives and knock the crap out of pd. It feels good to let loose and pound that bag. You are swinging with your left and right hand, your good side and your bad side. You are stretching to hit the bag. You are using footwork. All things that we pd fighters have trouble with from time to time. Magically, you are swinging, jabbing, punching, and moving those feet – not every time, some days are a struggle. You actually feel good and you forget you have pd!!!! It’s a strenuous workout and if you do it right, you feel great and you’re exhausted.

Mike #4
There is also a bonus I did not expect from RSB. You become close to your fellow boxers; they become like family. We all know how much pd has tried to take away from us. But now we fight back – we sweat, fall, work through the times the meds are not kicking in, laugh, and cry … don’t mess around with my new family!! I love them all. At the end of every class we gather with a chant – one, two, three … FAMILY!! Outside of the gym we do the best we can. This is my life. This is how I take charge. These are my people!! What are you waiting for? Find a RSB near you and change your life forever!!

Note: pd is purposely not capitalized. I refuse to give it any respect.

Mike Achin
Team Member, Team DominACHIN over PD

Rock Steady Boxing is Punching Out Parkinson’s

February 15th, 2016 by Helaine Isaacs, Event Director

RSB Channel 12 video

Research has shown that exercise is beneficial to those living with Parkinson’s disease (PD) and we hear regularly from our walkers about the wide range of exercise that they are participating in. One program that is sweeping the country, having grown to 93 affiliate locations in 28 states in the US, is Rock Steady Boxing (RSB).

The RSB organization will receive the Alan Bonander Humanitarian Award at this year’s Unity Walk. The RSB – New England affiliate in Pawtucket, Rhode Island will perform a demonstration at the Walk in April and was recently featured on Channel 12 Eyewitness News, the local WCBS and Fox News affiliate in RI. Check out the news feature about RSB in their community, featuring Rich Gingras, the owner of Fight2Fitness and RSB trainer.

We look forward to your joining us at the 72nd Street Bandshell stage in Central Park on April 23rd when we get to observe first hand how these folks are fighting back at PD!

Happy holidays!

December 23rd, 2015 by Parkinson's Unity Walk Team

Wishing you and yours a happy holiday season filled with good times shared with family and friends.

Warm regards,
The Parkinson’s Unity Walk Staff