• Archives

  • Categories

  • Register

  • Doante

  • signup

  • UW-blog-apps-badge

  • puw2015

Archive for the ‘Teams’ Category

Calling All Team T-shirts!

Monday, April 20th, 2015

Finished Quilt (6)

Many of our teams proudly wear their team t-shirts at the Walk, displaying their bright colors, clever team names and creative designs. Do you see your 2014 team t-shirt in the photo? Did you know that the top 50 team captains will be entered into a raffle drawing to win a PUW memory quilt made up of approximately 50 team t-shirts from the 2015 Unity Walk? Whether you win or not, we hope you’ll be part of this prize by bringing an extra team t-shirt with you on Walk day and dropping it off with the volunteer at the Team Photo booth. Can’t make it to the Walk or forgot to bring it with you the day of the Walk? No problem. You can mail it to the Unity Walk office at PO Box 275, Kingston, NJ 08528. The Unity Walk reserves the right to select which t-shirts to include in the quilt.

We received a treasure trove of team t-shirts last year and hope to have the same experience this April. Having your team t-shirt be a part of this quilt symbolizes the part you play in the Unitiy Walk. We couldn’t create this quilt without you!

A Message From Elizabeth Gold, Team Captain of Team Duke, 2014 PUW Top Rookie Team

Sunday, April 5th, 2015

How Team Duke’s Unity Walk experience unfolded resulting in them becoming our 2014 Top Rookie Team

photo 2

I discovered the 2014 Unity Walk while I was on maternity leave late last winter trying to juggle the high of having a healthy, new little boy and the low of watching my Dad in the throes of his fight with Parkinson’s. I was bouncing along that emotional spectrum one night researching ways to support both of my parents when I came across the website for the Unity Walk. I registered in the wee hours of the morning, created Team Duke in honor of my dad, and signed up to walk. It was a snap decision and I’m so glad that I did it.

I wasn’t sure what to expect since I had never directly solicited money through a walk or run. And I also wasn’t sure what to expect by so publicly acknowledging my dad’s illness. He was a private man, and while he certainly didn’t endeavor to hide his disease, he was the type of to deal with adversity privately rather than communally. I am cut from the same cloth, so it took me several days of writing and rewriting my solicitation email before I finally sent it off to my family and friends.

I set a goal of $5,000 which seemed too high, but why not? And then people started responding and I reached my $5,000 goal within two weeks. It was amazing and inspiring to me. I think our family and friends were relieved to be able to support my dad – even just financially – because they were feeling as helpless as I was. And the donations all arrived with messages of support. I loved sharing them with my parents, and it made my dad feel like he wasn’t in this alone. I quickly increased my goal to $7,500 and then $10,000 as the donations continued to come in. A few weeks before the event, I was feeling comfortable and confident enough to use the Walk’s social media tools like the Facebook app. I happily was surprised to hear from old acquaintances and friends on Facebook who offered their support and donated to Team Duke as well. I am grateful and thankful that Team Duke ended up raising the most money of any rookie team. Selfishly it is a source of pride since this was so personal, but the truth is that the funds made a tangible difference last year in helping to raise money for research. This is a terrible disease and we need to find a cure.

As much as I was dreading the fundraising aspect of the Walk, it turned out to be an uplifting experience for me and my family. It is easy to ask for money for Parkinson’s because I’ve had a front row seat to its impact on a loved one. And because 100% of the proceeds raised by the Unity Walk go to research, it is an even easier ask. You just have to send that first email!

The Unity Walk is a joyous and vibrant event. And everyone who attends understands immediately that this is a community of patients and caretakers, family and friends who are all in this together. It is such an uplifting morning and you can’t help but leave Central Park feeling like the glass is half full. Full of life and living.

Good luck to everyone. Team Duke looks forward to the honor of leading off this year’s walk on April 25th.

Elizabeth Gold
Team Captain, Team Duke

New York State of Mind

Monday, March 30th, 2015

I have the pleasure of opening the mail each day – and this time of year it is truly a pleasure to see all those checks arriving on a daily basis! One of our walkers, Doug Nemeth does an active mail campaign in addition to soliciting online donations and his donations are coming in strong. You can only imagine my surprise when I learned that Doug isn’t able to attend the Walk this year. It’s for a great reason – his son is receiving his doctorate in pharmacology. Doug “gets” the Walk. While he loves the experience of participating each year, he understands that at the end of the day, you don’t have to physically be at the Walk to raise funds for research and his donors understand that as well. Doug will end up raising as much this year as he has in the past when he’s walked in Central Park.

Life happens and things come up that may keep you from attending the Walk one year. We hope you will take Doug’s lead and continue to fundraise. This is one instance that you don’t have to be in it, to win it. Just like the lyrics to Billy Joel’s song, Doug is in a “New York State of Mind.”

Read on to hear from Doug Nemeth of team Livin’ La Levodopa directly …

Doug-Nemeth-for-blog

I was diagnosed 10 years ago with Parkinson’s disease. At the time I had no idea what Parkinson’s disease would do to my life. I feel that the quality of my life is better now than it was 10 years ago! This has a lot to do with my wife, family and friends. Much of this is due to the hard work of researchers funded by the Unity Walk.

Many of the friends we’ve made these last 10 years have been through the Parkinson’s family. I say family because we feel like brothers and sisters. We have made many friends through our support group.

Through this support group I learned of the Parkinson’s Unity Walk in New York City’s Central Park. Though all of us share some symptoms of the disease and not others, we all share one common desire – to beat Parkinson’s disease. By supporting the Unity Walk we are putting 100% of our donations into research that gives us and our children the chance at a life without Parkinson’s disease. I have been attending the Parkinson’s Unity Walk since 2009. We have a hard-working, proud, and loving team called “Livin’ La Levodopa.” It has been rewarding beyond what I ever imagined. Thousands of people coming together with love in their hearts for all the people around them and/or loved ones lost to this disease. We are driven to do all we can to beat PD and that is why I participate in the Unity Walk.

This year I’m the proud father of a son who is graduating from University of Pittsburgh with a Doctor of Pharmacy. Who knows? Maybe he will be the one who finds the cure. Unfortunately, the graduation is the same day as the Unity Walk in New York City. My priorities are in order and I will enjoy the entire weekend with my son at graduation. A big part of my heart will be with everyone in New York City that day.

That has not kept us from fundraising even though we won’t physically be at the Walk. So far, we’ve raised close to $4500 and we’re still going strong with close to four weeks left until the Walk. After all, it’s not about the physical walk. It’s about raising awareness, demonstrating support, and raising funds for research. The fundraising has gone well again this year. We are blessed to have many people who care so much and give of their time and resources. My wife and I have raised over $34,000 since 2009 for the Parkinson’s Unity Walk. My team,”Livin’ La Levodopa” has raised over $157,000 since its inception.

We are making a difference. Many thanks to all who have contributed. We could not do it without you.

That is why I am in a “New York state of mind.”

Doug Nemeth
“Livin’ La Levodopa”

Lights! Camera! Action!

Monday, February 16th, 2015

PCL1_TeamMcMossBLOG
The premiere episode of Parkinson’s CHAMP Live! on “PUW TV” was posted on our website in February and featured Team McMoss. It’s been five years since the Parkinson’s Unity Walk started featuring a Parkinson’s CHAMP each month on our website and we’ve decided it’s time to go “live.” Our walkers will continue to tell their stories but now you’ll actually get to hear their voices  out loud, rather than reading what they have to say.

We hope that listening to other walkers will remind you that you are not alone and there is an entire community supporting you in your fight against PD.

Our Parkinson’s CHAMPs represent a cross section of the Unity Walk. Some are new to the Walk; others have participated over the years. What they share is an appreciation of the sense of community that is created when thousands of people gather all committed to the same goal – finding new therapies and hopefully, one day, a cure for Parkinson’s disease.

This Year’s Memory Quilt is Done! And the 2014 Recipient is …

Friday, November 21st, 2014
2014 Parkinson's Unity Walk Quilt

2014 Parkinson’s Unity Walk Quilt

Each year, the Parkinson’s Unity Walk has a drawing for the top 50 team captains. The winner receives a memory quilt comprised of team t-shirts from the current Walk. This year’s winner is David Lee, Team Captain of Team James Lee. Congrats to David Lee and also congratulations to all eligible team captains who represented this year’s Top 50 Teams.

The 2014 Unity Walk had close to 500 teams and this is just a sampling of the creative team t-shirts that are worn proudly on the day of the Walk!

Finished Quilt upclose (2)Finished Quilt upclose (3)

 

 

 

 

 

 

 

Finished Quilt upclose (4) Finished quilt upclose (5)

 

 

 

 

 

 

 

 

The Unity Walk Memory Quilt was first introduced as a prize at the 19th Walk in 2013 and was received by Dan Lamendola of “A RI Team Since 1997.”

2013 Parkinson's Unity Walk Quilt

2013 Parkinson’s Unity Walk Quilt

You too can be in the running to receive the Memory Quilt from the 2015 Parkinson’s Unity Walk. All you need to do is start your team early so that you can get started on your fundraising and rally your family and friends, and be among the top 50 team captains!

For more about the quilt, join the conversation on our Facebook Page.