Archive for the ‘#puw2013’ Category

Sneak peek into

Sunday, March 17th, 2013

Guess which show we are raising awareness … in tomorrow!?!

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Set your DVRs to record The Doctors show on Monday, March 18th.
This date is based on if all goes as scheduled; we urge you to please always check your local listings and episode guides.

Sneak peak into topics that will be discussed:  DBS/Deep Brain Stimulation for Parkinson’s.  CLR01.  May May Ali will be on to raise awareness about Parkinson’s and #puw2013!

Spring isn’t far away but winter was back this weekend!

Tuesday, February 12th, 2013
Team DominACHIN's newest member

Team DominACHIN’s newest member

We know that many of our walkers in the tri-state area were buried in snow this weekend. Our thoughts are with those who lost power and experienced any hardship from the storm. We were spared here in central New Jersey with about 6 inches – a dusting compared to several feet of snow in CT and MA.

Team DominACHIN, known for facing life’s challenges with a positive attitude, used the storm to recruit it’s newest member, Frosty! He may not raise the $100 minimum to receive a PUW t-shirt but he was eligible for a Team DominACHIN Unite to Fight Parkinson’s t-shirt and they happened to have one left in his size. They never pass on an opportunity to raise awareness about PD.

 

Even with all this snow on the ground, the Walk is less than eleven weeks ago. Good luck with your fundraising and let us know if there’s anything you need.

We look forward to walking with you in Central Park on April 27th!

PUW takes New York by storm (in January)! Thanks to May May.

Monday, January 14th, 2013
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Together with a panel, May May Ali talks about many topics surrounding Parkinson’s on HuffPost Live

One more thing you can do … turn the lights on!

May May Ali and I just returned from a two day media tour in New York City. Our goal was to raise awareness about Parkinson’s disease and the Unity Walk NOW– with plenty of time for walkers to register and raise funds for research, and to reach people who don’t yet know about us. It was energizing and the pace was frenetic! We had a whirlwind schedule, meeting with reporters from FOX 5 Good Day New York, CBS WLNY The Couch, HuffPost Live, FOX News Radio, Better Show, CNN, multiple Sirius XM radio shows, and more. We had incredible opportunities to share our story!

It was a really great few days because we were able to raise awareness for our entire community and because the media was receptive to our passion and cause. They were touched by May May’s recollections about her father, Muhammad Ali, and inspired by her energy to encourage others to take action. May May compared being in the dark about the disease to walking through your house with the lights off. She encouraged all those living with Parkinson’s and their families to “turn on the lights” by educating themselves at the Walk.

When asked what her number one message was, she replied that it ” … would be to please educate yourself on Parkinson’s disease … Try not to be afraid. Don’t isolate yourself, and learn because with wisdom there’s power and empowerment. You will improve the quality of your life … Would you rather walk through your house in the dark trying to look for everything? Or do you want to turn the lights on? … Just get involve and be proactive and get active in the disease and don’t let it overtake you.”  -A Few Moments with May May Ali on FOX News Radio

To those who have not yet heard about our annual gathering in Central Park, our message was definitely clear– the Unity Walk is one thing you can do to take action. It empowers the Parkinson’s community by providing educational information and resources about the disease; creates inspiration by bringing the Parkinson’s community together; and 100% of donations go to much needed research.

We’ve already been invited back to a number of these news shows and several reporters have promised to personally support the Walk. (Especially when they heard it was only a 1.4 miles!) These new contacts have an extensive reach and will continue to help us spread the word about the Walk, raising more funds for research. Our hope is that we are able to reach so many others that will turn the lights on. The more people who join us in the fight against Parkinson’s disease, the closer we will get to our goal of finding the cause and cure for PD.

We had many favorite moments during our media tour, and just wanted to share with you one of them, which is this 25′ HuffPost interview. While we do start off by talking about the Walk, the rest is really informative on various Parkinson’s topics. Please do check it out as it is a great dialogue on many issues that surround Parkinson’s disease. Talked about caregivers, DBS, movement disorder specialists, and the hosts even mentions scurvy and WebMD? Don’t miss this one … and please remember to keep your lights on!

(There are still a handful of interviews that we’re still trying to get a hold of and another set that will be aired at a later date, here’s how you can stay tuned! We’ll update links on this post as we receive them.)

Update: Photos from the day are up.

Carol Walton
Executive Director, Parkinson’s Unity Walk and CEO, The Parkinson Alliance

“Someone” is excited about #puw2013 and needs to find my login a.s.a.p.

Wednesday, August 1st, 2012

You know it’s official when the hashtag is declared.  Drum roll please… here’s the first ever #puw2013 tweet.

Here in our office, we’re always asking, is it April yet?  It’s not, of course, but we are still already excited about our next Walk!  It will be #19, we are not getting any younger.  It’s easy to be this excited when every year, we see how much can be done, together.

PUW 2013 Registration is officially open.  The website is now up and running and we can’t wait to work with both long standing and new walkers.  Yes 2013 is open even before receiving The Date.  We do everything we can (they know us really well and we work very closely with them throughout all the planning), however, The Parks Department usually gives us their approval during November/December.

So if you haven’t been able to tell yet, and if you are new to our blog and online communities… first of all… welcome!  And just a little heads up that we are always excited all year round!  But even more so right now, practically doing cartwheels, after seeing those who jumped on the bandwagon this early.  This list of teams this early on is amazing!!!  Thank you to those who have already signed up and seeing their fundraising tickers and thermometers… already rising.  See, the thing is, you have a lot to do with this excitement.

And in case you are reading this and hoping we don’t tell you that the early bird gets the worm (lols!) and wondering why you should start remembering where you kept your 2012 username and password so you can register early (?) … here are a few tips about how early registration may help you.

If for some reason you can’t find the 5-subject college-ruled blue notebook you wrote in your last year’s login, we can help with your username and password.  Or was it the pink notepad one?