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Calling All Team T-shirts!

April 20th, 2015 by Helaine Isaacs, Event Director

Finished Quilt (6)

Many of our teams proudly wear their team t-shirts at the Walk, displaying their bright colors, clever team names and creative designs. Do you see your 2014 team t-shirt in the photo? Did you know that the top 50 team captains will be entered into a raffle drawing to win a PUW memory quilt made up of approximately 50 team t-shirts from the 2015 Unity Walk? Whether you win or not, we hope you’ll be part of this prize by bringing an extra team t-shirt with you on Walk day and dropping it off with the volunteer at the Team Photo booth. Can’t make it to the Walk or forgot to bring it with you the day of the Walk? No problem. You can mail it to the Unity Walk office at PO Box 275, Kingston, NJ 08528. The Unity Walk reserves the right to select which t-shirts to include in the quilt.

We received a treasure trove of team t-shirts last year and hope to have the same experience this April. Having your team t-shirt be a part of this quilt symbolizes the part you play in the Unitiy Walk. We couldn’t create this quilt without you!

Join Us on the Plaza of the Today Show, Friday Morning, April 24, 2015

April 20th, 2015 by Parkinson's Unity Walk Team
Today Show Official Pic 2

Join us on Friday, April 24, 2015 as we gather outside the Today Show to help raise awareness about the 21st Unity Walk!

We will gather on the plaza outside the Today Show on Friday morning, April 24th to raise awareness of the 2015 Parkinson’s Unity Walk.

Please check this blog before coming to the Today Show to confirm that the meeting time and location have not changed. Here are the details as of now:

  • Some of us will arrive as early as 5:00am to hold a spot in line on West 48th Street between 5th and 6th Avenues. No need for you to get there that early but you’re welcome to.
  • At 6:30am, they will allow us onto the plaza. We will do our best to be on the north side of the plaza nearest West 49th Street.
  • We will be wearing PUW t-shirts and have signage, so look for us there!
  • We’ll have signs for you to carry or you can help hold up our banner.
  • Feel free to wear a PUW t-shirt if you have one. If not, we will have extra PUW t-shirts.
  • Around 7:00am, Today Show staff comes out about once every half hour, depending on their segments and the weather. Best case, we may have ten seconds to plug the Walk.
  • If you see us on TV, you can tweet @unitywalk and use hashtag #PUW2015 or go on our Facebook page.
  • DRESS WARM!!! Even though it is April, it can be considerably colder in the early hours than it is at noon. It may feel more like February or March at that hour, so dress in layers.
  • If you need to reach out someone on Thursday night or Friday morning about the Today Show, please call our Event Director, Helaine Isaacs on her cell 609-651-9155.

It’s possible that we might be out there for a couple of hours to get several seconds of air time for the Unity Walk but we think it’s worth it. It’s a great “warm up” for the Unity Walk and you’ll get to meet a great group of fellow Unity Walk supporters. Please consider joining us!

Questions? Call our office at 866-789-9255 or email info@unitywalk.org. We look forward to seeing you there.

Join Our Facebook Event and Invite Facebook Friends and Family

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View our video at the Today Show from last year.

Knock Down Parkinson’s with Rock Steady Boxing Will Be at the 21st Parkinson’s Unity Walk

April 15th, 2015 by Guest Blogger

Awareness of Rock Steady Boxing’s value and its popularity is growing among the Parkinson’s community. Just around the time that they were featured on NPR, we received a phone call from Marlene Kahan, a long-time walker who asked if we knew about this program. She’s been attending at Gleason’s Gym and was singing its praises. Marlene introduced us to Roberta Marongiu and Alex Montaldo, Co-founders of Rock Steady Boxing NY/LA. Not only did Roberta and Alex agree to share their experience on the PUW blog but they’ve agreed to have members of their group perform two demonstrations on the Bandshell stage on Walk day. Check the Event Timeline for approximate times of their demonstrations and listen to announcements from the Bandshell stage for exact times.

RSB banner
Rock Steady Boxing NY/LA is a bi-coastal non-profit organization devoted to helping people with Parkinson’s disease (PD) re-gain control over their lives. We fight back against PD inside and outside the ring!

Intense exercise and boxing drills not only help improve motor and non-motor functions, but they also contribute decisively to deconstructing the stigma associated with the disease.

Rock Steady Boxing was created in 2006 in Indianapolis, IN. We fell in love with the program and decided to bring it to New York and Los Angeles a year ago, and now we have two wonderful groups, one in Dumbo (NYC) and one in Santa Monica (LA).

Boxing classes are the core of our program, but our goal is to create a much more extensive support system. Most people still don’t know much about PD, so the diagnosis comes even more as a shock for them and their families, making them feel powerless.

We believe that a good fighter is an informed one! That’s why we created a network of Parkinson’s experts, support groups, physical therapists, and neurologists that believe in our program and are always ready to help.

Parkinson’s is a big, scary enemy, but together we can fight back. We want our boxers, and all the people who are battling this disease to know that they are not alone. They’re part of a team, together with their families, friends, doctors, physical therapists, support groups and us. We are their corner-men, always present and ready to help and give them strength, but they are the captain of the team. Their fighting spirit is key to knocking down Parkinson’s day by day, until we manage to knock it out for good!

RSB-blog-photo-2

Alex Montaldo
Co-founder, Rock Steady Boxing Head Coach

Dr. Roberta Marongiu, PhD
Co-founder. Rock Steady Boxing Coach

Jewelry for a Cure

April 9th, 2015 by Helaine Isaacs, Event Director

There are an endless number of ways to raise funds for Parkinson’s research. Recently, several of our walkers have decided that jewelry is the way to go! Here are a few examples of how our walkers are accessorizing to raise funds for PUW.

PD Charity Charms

PD Charity Charms
Meaghan Griffith participates in the Unity Walk in memory of her grandfather. She had an idea to make a bracelet with a PD charm and “PD Charity Charms” is now a reality. To purchase a bracelet or learn more, visit www.pdcharitycharms.com. Bracelets are priced at $25 for one; $45 for two; and $200 for a ten pack. There were many steps in between the creation of her idea and it becoming a reality. Meaghan had to come up with the design, figure out how to have the bracelets manufactured, and design the website – no easy task while attending college and working full-time – but she persevered because she is committed to the cause.

Bling for the Cure

BlingfortheCure2015_web3
Doreen Erasmus wanted to do something fun to kick start Deen’s Day Tripper’s fundraising for the 2015 Unity Walk. People have house parties for clothes and housewares. Why not jewelry? A friend of hers is a Silpada Jewelry representative and together they planned a “Bling for Parkinson’s” fundraiser. Doreen’s dining room was transformed into a jewelry store for one evening in February. Everyone had a blast and it boosted her team’s fundraising efforts.

ALEX AND ANI Fundraiser

Alex and Ani Fundraiser
Who hasn’t seen the wide array of bracelets available at ALEX AND ANI? Instead of hosting a jewelry party in her home, Kristen Conroy arranged for a fundraiser at the Alex and Ani store in Ridgewood, NJ on May 19th. ALEX AND ANI will donate 15% of all in-store orders placed during the event! Supporters can also shop or call in their order to the Ridgewood store one week before the event and let them know your purchase should be credited to the Parkinson’s Unity Walk. Alex and Ani’s donation will be credited to Conroy’s Conquer’s fundraising efforts. Click here for more information.

We encourage you to be creative with your fundraising! Get in touch with your “inner fundraiser” and put the FUN in “FUNdraising.”

In Subways and Buses Courtesy of the Wilkins Parkinson’s Foundation

April 6th, 2015 by Katherine Savillo, Manager, Events

Courtesy of the Wilkins Parkinson’s Foundation (WPF), advertisements about the 21st Parkinson’s Unity Walk can be found in New York City’s subways, buses and stations!  We are very grateful to WPF for donating media to help promote awareness about the Parkinson’s Unity Walk and about Parkinson’s disease.

If you’re in New York, keep an eye out for our ads like the one pictured below and send a photo (of you next to the sign) to @unitywalk #puw2015.