Other Parkinson`s Disease Organizations at the Unity Walk
Born from the idea that people with Parkinson’s could benefit from the insight and specific techniques and methods used by dancers to guide their own bodies and minds, Mark Morris Dance Group's Dance for PDŽ program strives to increase coordination, balance, flexibility, and strength through music and movement from a broad range of dance styles. In classes led by professionally-trained dancers and musicians, participants experience the grace, fluidity, and power of dance in a social, joyful, and supportive environment. Serving thousands of individuals, their families, and care partners, the breadth and global impact of Dance for PDŽ continues to develop each year. In addition to the flagship program in New York City, Dance for PDŽ classes and teacher training workshops are conducted around the world. Affiliate programs and partners now exist in more than 120 communities, 42 states, and 16 countries across six continents. For more information, please visit www.danceforpd.org.
Since DBS-STN.org started in 2003, our goal has always been to provide information to the Parkinson's Community related to deep brain stimulation surgery. While the focus was in the STN, we know DBS is successful in other areas. To make it clear that our organization is for anyone considering DBS surgery of any type, in March 2013 we were renamed DBS4PD.org.
DBS4PD.org is committed to helping improve the quality of life of DBS-STN patients and their caregivers. Through patient and caregiver surveys, we are not only asking questions but providing answers that will help the DBS-STN community. Our survey questions compare people living with Parkinson’s – both with and without DBS. Please join us in coming together, discussing issues, and answering questions.
Biomedical research is entering a new era of “patient power” with seismic opportunity for people living with disease to partner with scientists to influence research design and shape patient-relevant outcomes. Technology now allows thousands to contribute vast volumes of data on their lived experience of disease: from symptoms and quality of life to treatment satisfaction and research participation preferences. This data holds the power to redefine therapeutic priorities, influence funding streams and optimize trial design.
The Michael J. Fox Foundation has established Fox Insight, a digital platform and dynamic online clinical study, to build a large, diverse cohort of people with Parkinson’s and age-matched control volunteers. Fox Insight compiles health and disease information entered when participants first join the study and every 90 days thereafter through a series of online questionnaires that may ask about symptoms, experiences performing daily tasks, medical and family history, or other health-related topics.
Fox Insight is open to anyone – with or without Parkinson’s – interested in sharing their health information to advance research. To get started, go to www.foxinsight.org. To get started, go to www.foxinsight.org.
Fox Trial Finder is a web-based clinical trial matching tool to assist both those with and without Parkinson’s disease in identifying and connecting with Parkinson’s clinical research opportunities that urgently need their participation. After volunteers input information on themselves (such as zip code, date of birth, and brief medical history), Fox Trial Finder will provide potential trial matches. Fox Trial Finder also provides the opportunity for volunteers to connect directly with trial coordinators through a secure messaging interface on the site.
Register for Fox Trial Finder by visiting www.foxtrialfinder.org and raise your hand to participate in clinical research for PD today!
The National Institutes of Health (NIH) is the nation’s medical research agency. The National Institute of Neurological Disorders and Stroke (NINDS), a component of the NIH, is the nation's primary supporter of biomedical research on the brain and nervous system. It offers information on research support and free publications for patients and their families on Parkinson’s disease and other neurological disorders. Members of the NINDS staff will be available at the exhibit booth to answer questions about research on Parkinson’s disease.
Rock Steady Boxing Inc., a 501 (c)(3) nonprofit organization, gives people with Parkinson’s disease hope by improving their quality of life through a non-contact boxing based fitness curriculum.
RSB programs are offered all over the world by partnering with RSB affiliate gyms. Classes are divided into levels and based upon each person’s unique Parkinson’s symptoms and overall level of fitness. Visit our website www.rocksteadyboxing.org to find a class near you and start fighting back against Parkinson’s today.
Across the globe, thousands of people with Parkinson’s, their caregivers, family and friends are turning their passions into successful fundraisers for Team Fox, the grassroots fundraising community of The Michael J. Fox Foundation. From flipping pancakes to running 26.2 miles in a big city marathon, Team Fox members have raised over $56 million (and counting!) to advance research progress. And thanks to the support of generous donors, 100 percent of proceeds go straight to the Foundation’s high-impact programs. Get involved at www.teamfox.org.
Team Hope™ is the National Parkinson Foundation's community FUNdraising program that allows people in the community to raise funds and awareness for Parkinson's however they like. These community fundraisers take the lead in planning their own event or you can participate in an endurance race and run to beat Parkinson’s. Join Team Hope™ today at www.parkinson.org/teamhope.
Formed in 2000 and co-chaired by John and Edna Ball, Team Parkinson’s mission is to raise Parkinson’s disease awareness; to raise money for research for a cure; and to empower people with PD to take charge of their lives through exercise. John has had PD for over 40 years and has completed 25 marathons plus a 31 mile ultra-marathon. For more information please visit our website www.team-parkinson.org.
The World Parkinson Coalition, Inc. is a nonprofit organization dedicated to providing an international forum on Parkinson’s disease. By bringing people with Parkinson’s and care partners together with some of the world’s most respected movement disorder specialists, physicians, neuroscientists, nurses, rehab specialists, the World Parkinson Congresses provide a vibrant and empowering international forum to discuss and learn about the latest scientific discoveries, medical practices, and care initiatives for PD.
Visit us at wpc2019.org to learn more about us.